Hi, My name is Connie and my son Billy was born with a leg length discrepancy.   I'm sharing this for other families/individuals dealing with this issue, both for support and for information on the latest treatment options and how this can affect life.

I have created an online support group on Facebook and am trying to get the word out in the cyber community.  I am including a link to the support group.
 
My son was born with a leg length discrepancy due to Caudal Regression Syndrome/Sacral Agenesis.  He was missing the left half of his sacrum, and this affected the nerves to the left leg.  Because of this, his left leg was smaller, shorter and was missing muscles and an artery below the knee, and he had a clubfoot.  His right leg developed normally, causing his discrepancy. Even though this happened prior to birth and might be considered congenital in nature, my best guess is that this would be considered a developmental discrepancy since the bones are mostly normal in nature, just smaller than average from nerve issues.
 
At birth, he had a discrepancy of approximately 1/2cm.  By age 1, he had a 1cm discrepancy which grew slowly and steadily until he was about 6 years old, and it stabilized at about 4.5cm for a couple years.  Then again, at about age 10, his discrepancy starting increasing again until at age 11.5 it was up to 6cm (he was projected to have a discrepancy of about 9-10cm at full maturity).  At this point, due to his above average risk of complications because of his unique leg anatomy, his doctor decided it was time to do his first lengthening.  He only wanted to aim for 2" (5cm) to allow for as little problems as possible and get the rest later on, but we ended up getting 6.3cm.  Currently at full growth at age 17, he has about a 2-2.5cm discrepancy that developed after lengthening, but he is quite happy wearing a lift and isn't interested in another lengthening procedure.
 
There is a link called "Life with a Fixator" above which chronicles the good, the bad and the ugly regarding our journey through this process.  There are also photo galleries from before surgery and during the process and aftewards.  I hope it helps others who are going through this, or will be in the future!

I am also providing links to the side for more detailed information on leg length discrepancy,treatments, predicting the discrepancy, etc. for those who want in depth coverage of the causes, effects and treatment options out there.

Hope you find this information helpful!